Registered Charity

Congenital Heart Defect Coalition (CHD Coalition)

Congenital Heart Defect Coalition is a nonprofit organization whose sole purpose is to improve the quality of life for all affected by congenital heart defects (CHDs). We will successfully achieve our mission by uniting and supporting the CHD community, funding research, and raising public awareness.

Williams Syndrome Foundation

Mission: To be the first point of contact for individuals with Williams Syndrome, their families and professionals needing support and information regarding the Syndrome.

Williams Syndrome Association of Ireland (WSAI)

Mission: to promote the general welfare of children suffering from Williams Syndrome and to provide practical help and support for children affected by Williams Syndrome

Wessex Heartbeat

Mission: support the work of the Wessex Cardiac Centre (WCC), one of the UK's leading heart treatment centres.

VSFS 22q11 Foundation

Mission: to raise awareness of VCFS and to provide information and support to families affected by the deletion and to provide a contact register enabling families of children with similar symptoms to contact each other.

Unique Rare Chromosome Disorder Support Group

Mission: to inform, support and alleviate the isolation of anyone affected by a rare chromosome disorder and to raise public awareness.

Turner Syndrome Suport Society

Mission: to offer support, advice and information to women and girls with Turner Syndrome and their families.

Tuberous Scleroris Association

Mission: to provide support for today and a cure for tomorrow for those with Tuberous Sclerosis.

Tiny Tickers Charity

Mission: to improve the detection, diagnosis and care of heart babies, before and immediately after birth.

THROB - The Heart Rehabilitation Organisation of Berkshire

Mission: to promote cardiac rehabilitation in the Berkshire area covered by Heatherwood Hospital in Ascot and the Wexham Park Hospital in Slough.


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